Supporting Agent Orange Caregivers in Vietnam

Vision & Stakeholders

Vision

Quang_Binh_in_Vietnam.svgThis startup is led by the Association for the Empowerment of Persons with Disabilities (AEPD) in Quang Binh province Vietnam. It supports families that have been devastated by Agent Orange, the dioxin-laden defoliant that was sprayed across much of Vietnam during the war. Quang Binh province alone has registered over 19,000 Agent Orange casualties.

Our goal with this startup is to explain the human cost of Agent Orange and follow the stories of caregivers like Mai Thi Loi, pictured below. Three of Mai Thi Loi’s sons were so severely affected by dioxin poisoning that they have been chained up to prevent them from harming themselves and others.  Like many Agent Orange caregivers, Mai Thi Loi is an aging widow. By easing the burden on her we support her family and community. As their profiles show, the caregivers are devoted, courageous, and hard-working.

Our program raises money for a limited number of vulnerable caregivers like Mai Thi Loi. The families have been chosen by AEPD on the basis of a 2014 survey in Quang Binh province that was financed by Scott Allen, an AP Board member. Once a family is selected by AEPD, we post their profile on these pages and seek funding for a cow or another form of sustainable investment. An AEPD outreach worker then helps the family to prepare a business plan and follows up with regular visits. AP also follows up through staff visits, and by sending a Peace Fellow to volunteer at AEPD during the summer. Several Peace Fellows have raised significant amoints for the families through crowd-funding: Ai Hoang (2016); Jacob Cohn (2017); and Marcella de Campos (2018).  We are deeply grateful to them all.

Our long-term goal is to help AEPD produce a model of sustained support for Agent Orange families that could eventually be used on a much larger scale. This is happening in three ways. First, AEPD is providing community support and admitting Agent Orange caregivers to its highly successful self-help groups. Second, we are finding that a cow can produce a serious income that can even cover medical costs. Third, in taking possession of a cow, the families are required to develop a business plan with help from an AEPD outreach worker. In time, we hope, this will make them more credit-worthy, and open the door to agricultural credit and other government support. This is particularly important for third generation victims of Agent Orange and veterans who joined up after the war ended – neither of whom qualify for government compensation.

However this startup evolves, it will remain firmly focused on the caregivers and their families. (February 2020)

Beneficiaries

maitholoandson1000Mai Thi Loi and Her Sons

Mai Thi Loi has been struggling since her husband died in 1989 and left her with a legacy of Agent Orange. Three sons are deeply affected. Nguyen Van Kien, 31, the oldest, is so disturbed that he flies into a rage and breaks up the house if left alone. His desperate mother had no option but to chain him up. In 2016, his younger brother also had to be constrained. AP has raised $1,500 for this family. Read our news bulletin and read more about this family here.

Funded

20186066318_e3a0a830a0_bPham Thi Do and Her Family

Pham Thi Do feeds her daughter Luyen, one of five children in this family whose lives have been ruined by Agent Orange. Luyen was born in 1992 with cerebral palsy and has been bed-ridden ever since. Her mother says that on stormy days Luyen presses her nails into her hands so hard that they cut her palms. AP has raised $1,435 for this family. Read more about this family here.

Funded

 

Le Thanh duc and his family1000Le Thanh Duc, Ho Thi Hong, and Their Three Daughters

Mr. Duc was exposed to Agent Orange while serving in the Army and passed the poison to his three daughters, who are virtually paralyzed. The couple suffered more heartbreak in 2014 when their youngest son was killed in a motor accident. Yet, when AP visited in 2015, 2016 and 2017 Mr. Duc was undaunted. Helped by AEPD, he has launched two small businesses and appeared on television as an advocate. AP has raised $1,500 for this family. Read more about the family here.

Funded

Visit the Profiles tab to meet more stakeholders.

Background

Background

Seth McIntyre 1000

Seth McIntyre, center, a graduate student at Brandeis University. helped AEPD organize the first-ever needs assessment of 500 Agent Orange victims in Quang Binh province.

The Association for the Empowerment of Persons with Disability (AEPD), AP’s partner in Vietnam, has worked with survivors of Agent Orange (AO) in Quang Binh Province for several years. Several Peace Fellows who have served at AEPD have also visited survivors and been inspired by their resilience. They included Simon Klatschi (2010), who profiled Mrs. Nguyen Thi My Hue, with her beautiful singing voice; and Kelly Howell, who was the first to meet the redoubtable Le Thanh Duc and the Phan siblings.

In 2014, AP and AEPD asked Peace Fellow Seth McIntyre to coordinate a questionnaire of 500 families that were receiving compensation from the government for Agent Orange in the province of Quang Binh. The survey came to an important conclusion: while the needs of victims are great, the burden of Agent Orange falls most heavily on the caregivers who have to support damaged children while also struggling to provide for the whole family. Many are aging widows.

As a result, in 2015 AEPD and AP decided to focus on the special needs of caregivers. AEPD identified eleven severely-affected families in Quang Binh and arranged for Peace Fellow Armando Gallardo and Iain Guest from AP to visit each family in the company of an AEPD Outreach Worker. Armando and Iain produced the profiles and photos on these pages, and AP began seeking funds for each family, as their profile was posted. AEPD outreach workers drew up a modest budget based on the needs of caregivers.

Our 2016 Peace Fellow Ai Hoang helped AEPD to manage the program through to the end of 2016 – and raised funds for three families through online appeals. Ai’s father visited AEPD during a trip to Vietnam and completed the funding of Le Tien Dung and his wife, who lost 12 children to Agent Orange. This rounded off a remarkable gesture of reconciliation by Ai’s family, which had left Vietnam years earlier as refugees.

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Victims: Dioxin poisoning stole up on Tuan in his mid-teens. Prevented from attending school by his illness, Tuan made model buildings from chopsticks until hemophilia landed him back at the hospital in 2017.  Read his story here.

In 2017, the torch passed to Peace fellow Jacob Cohn. Jacob visited the four families that had received funding and updated their profiles. He also met with the family of Thanh Thi Thao, which has been funded from AP’s core program and started his own online appeal for a sixth family, Duong Thi An, and her three children. Jacob reached his target by the end of July and accompanied AEPD outreach workers when they went to help the family draw up a business plan. Jacob also helped AP launch an appeal for the family of Phan That battered by Agent Orange and by climate change.

These dedicated Peace Fellows have helped AEPD and AP to develop an entirely new approach towards the challenge of Agent Orange. We will remain focused on the needs of individual caregivers, and bring their story alive. With AEPD’s help, we will continue to identify new families in need and raise modest amounts of money for them. At the same time, we will also check up regularly on past beneficiaries and do what we can to help – knowing that it will be downhill for most of them, as the parents grow older and the children gradually deteriorate.

Le Thanh Duc and outreach worker

Peer Support: AEPD outreach workers like Nguyen Van Thuan (left) were wounded during the war. This helps them to better understand the needs of AO survivors.

This approach differs from that of other much larger AO programs which seek to clean up “hot spots” that were heavily sprayed or to strengthen medical systems. We want people to identify with these families on a human level, and to invest in them.

Given the immensity of the Agent Orange tragedy – 3 million Vietnamese affected – ours is a tiny contribution. But by helping these families we also strengthen AEPD’s outreach workers who were themselves wounded in war and now provide indispensable peer support to these damaged families These remarkable people are featured later in these pages and their unique model of peer support needs to be made more widely available. We hope this campaign will help.

Finally, there is the personal impact on all of us working in close quarters with these family members. This is remarkably humbling and we emerge better people for it.

 

Challenge

Challenge

Leaking_Agent_Orange_Drums_in_Vietnam

The challenge: Dioxin from Agent Orange has poisoned up to 3 million Vietnamese and placed a heavy burden on caregivers. Read the reports from the Aspen Institute.

Between 1960 and 1972 US planes dropped 11.4 million gallons of dioxin-laden Agent Orange (AO) over the south of Vietnam and parts of Laos and Cambodia, at a level of concentration many times greater than that recommended for commercial use.

The dioxin entered the food chain, triggering a wide array of medical conditions and cancers in Vietnamese and American service-members and their families. The Vietnamese Red Cross has estimated that over 3 million Vietnamese are affected.

Rachel design2Agent Orange has long complicated relations between the governments of the US and Vietnam. In 2007, advocates from Vietnam and the US laid the basis for a less recriminatory approach by establishing the US-Vietnam Dialogue Group on Agent Orange/Dioxin. Presidents Obama and Truong Tan Sang built on this by developing a new “comprehensive partnershipin July 2013 that included a commitment to clean up heavily sprayed “hot spots,” including the former airports of Da Nang and Bien Hoa.

While any action was welcome, Vietnam’s AEPD felt that this approach focused too much on the environment and too little on people. The policy also sidestepped the real problem: veterans who had been exposed to spraying in the hot spots had carried the poison back to their families across Vietnam. This crisis was nationwide.

Senator Patrick Leahy took the lead in pushing for a broader policy and in 2015 the Senate released $20 million to USAID to support several pilot programs in Vietnam. The funds were divided between southern provinces (Dong Nai, Tay Ninh, Binh Phuoc, and Binh Dinh) and the central and northern provinces (Quang Nam, Hue, and Thai Binh). In addition, USAID sought to make medical services more accessible to victims of Agent Orange.

While this expansion was welcome, it still focuses largely on provinces that were heavily sprayed. For example, Quang Binh (which was lightly sprayed – 3,800 gallons) was omitted, even though a 2013 survey by AEPD and the government found that 5,266 AO victims were living in the province.

The USAID approach also focuses mainly on the needs of victims. While the medical needs are great, AEPD argues that the burden falls on the entire family, particularly the caregivers. This emerged from a 2015 survey conducted by AEPD and AP. As veterans die off, the burden of caring for their severely affected children falls on aging widows.

As AEPD and AP have dug deeper into the tragedy of AO, other problems have emerged. The Vietnamese government compensates AO victims, but the amounts are often inconsistent and insufficient. Furthermore, third generation victims (grandchildren) do not qualify.

When they met in September 2015 to consider the results of the AEPD/AP survey in Quang Binh, several members of the survey team expressed the hope that these policy issues could be raised with the central government.

 

Response

Response

In touch again: Le Quoc Huong (left) an Agent Orange victim, first met Luong Thanh Hoai (right), at an eye hospital in Hanoi in 1988. Today, Mr Hoai advises Luong’s family as an AEPD outreach worker.

In touch again: Le Quoc Huong (left) an Agent Orange victim, first met Luong Thanh Hoai (right), at an eye hospital in Hanoi in 1988. Today, Mr. Hoai advises Luong’s family as an AEPD outreach worker.

AEPD’s Agent Orange campaign rests on the sturdy shoulders of outreach workers who have themselves recovered from the wounds of war and dedicated themselves to helping others.

AP Fellows have got to know these remarkable individuals well through the years. In 2010, Peace Fellow Simon Klantschi wrote a glowing blog on Luong Thanh Hoai, who lost his left arm and right eye during the war against China in 1988. A man of rare determination and talent, Luong Thanh Hoai, won a silver medal in the javelin and discus at national games. He and Simon became close friends.

Five years later, Luong Thanh Hoai was back on the front lines, helping to identify Agent Orange families in the district of Le Thuy, which he covers for AEPD. In a strange twist, he also met an old acquaintance while introducing AP to the family of Mrs. Duong Thi An, one of the caregivers profiled on these pages. Mrs. An’s second son, Le Quoc Huong, appears to have lost his eyesight to Agent Orange. He began to encounter problems with his eyes around the age of ten and receives Agent Orange compensation from the government. After several operations, he is almost blind.

Veterans together: Le Thanh Duc, left, an Agent Orange victim, gets sage advice from Outreach Worker Nguyen Van Thuan

Veterans together: Le Thanh Duc, left, an Agent Orange victim, gets sage advice from Outreach Worker Nguyen Van Thuan

As fate would have it, Le Quoc Huong passed through the eye hospital in Hanoi in 1988, around the same time that Luong Thanh Hoai, the AEPD outreach worker, was brought in for an emergency eye operation after being wounded. They were then reunited when Mr. Hoai started working in the district in 2013. This helps to calm the younger man. “After talking with me the son is more confident,” says Mr. Hoai. ” He is not afraid to talk to strangers. Also, we help to break down the barriers with their neighbors.”

We saw the same chemistry at work when Nguyen Van Thuan, another AEPD outreach worker, took us to meet AO families in Bo Trach district. Mr. Thuan lost an arm and most of his second hand to unexploded ordnance (UXO) and had only recently begun to work with Agent Orange families. As a former veteran himself, he expressed admiration for the families: “To suffer from dioxin poisoning is a mark of courage. It means you fought bravely in the war,” he says.  One of his clients, Le Thanh Duc, who is struggling to care for three severely disabled daughters and a depressed wife, listened carefully as his fellow veteran gave him advice on how to sell his fish sauce (photo).

Outreach Worker Loan Van Thai

Outreach Worker Loan Van Thai

Loan Van Thai, a third AEPD outreach worker who helps Agent Orange families, had a terrible war. He lost his right hand and suffered severe wounds in a leg after being shot at from the air. He then spent 6 years in a Hanoi hospital while doctors tried to save his leg, and emerged with one leg significantly shorter than the other.

A true survivor, Mr. Thai feels that he is stronger because of his ordeal, and better able to provide peer support to the Agent Orange families.  “Some victims won’t talk to normal people,” he says. “There are special ways to communicate with people with disabilities. To encourage them I tell them my story, about the time I had to be brave. I can also help them to get special medical care.” When his own spirits start to flag, Mr. Thai goes fishing.

Part business advisors and part personal counselors, these outreach workers serve as a bridge between the Agent Orange families and government services. We hope that this campaign will help to cover their costs and enable AEPD to recruit more like them.

Results

Results

Nguyen Huu Phuc, Nguyen Thi Thanh

The ninth beneficiaries of AP and AEPD’s Agent Orange campaign, Mr. Phuc and Ms. Thanh elected to receive a cow and a calf in 2018. The couple care for their three living children affected by Agent Orange exposure. While challenges ahead are likely, Mr. Phuc and Ms. Thanh are optimistic that the recent purchase of livestock will go along way in supporting their family moving forward. Click here for the family profile.

 

Mrs An 4

August 2017: Tran Thi Thao, Ngo Gia Hue

In August 2017, Tran Thi Thao and Ngo Gia Hue received a cow and calf. Since then, the cow has given birth to two more calves, dramatically increasing the family’s ability to cover medicine and emergencies. Ms. Thao and Mr. Hue are happy to share that their three daughters have become much more social with outsiders and are receiving the medicine they need, resulting in much improved livelihoods all around. Click here for the family profile.

 

Duong Thi Hue

Duong Thi Hue was the seventh beneficiary of an AP and AEPD grant. She received a cow and a calf in late 2016 to help cover the costs of single-handedly caring for three children with severe Agent Orange-related disabilities. In 2018, she sold the original cow and the original calf gave birth. Ms. Hue was also featured on a television program that led to around $1,600 in donations. She has been able to put 100% of this income into savings to support her children’s futures. Click here for the family profile.

 

Mrs An 4                   

August 14, 2017: Mrs. An receives a buffalo and calf.

Duong Thi An is the sixth Agent Orange caregiver to benefit from an AP appeal. She is seen here getting the good news from Peace Fellow Jacob Cohn, who is volunteering at AEPD as a Peace Fellow. Jacob has raised $1,500 for Mrs. An. This will pay for a buffalo and calf, which will allow Mrs. An – a widow – to earn a steady income and start paying the costs of eye surgery for her second son, Huong. Click here for the family profile.

   

November 1, 2016: Le Thanh Duc buys chickens!

Le Than Duc, left, is the third Agent Orange caregiver to receive funds through the AP appeal. He plans to raise three pigs and 80 chickens in his backyard, where he can also keep an eye on this three daughters. Chickens are in high demand and he could earn $1,400 a year if they all stay healthy. Mr. Duc has received loans from AEPD in the past to produce fish sauce. But that business collapsed in April 2016 after a steel company poisoned the sea and killed fish. He is optimistic about his chickens.

September 29, 2016: Mai Thi Loi and her new buffalo.

Left: Mai Thi Loi’s struggle with Agent Orange has touched many friends of AP, who have given generously to an appeal by Peace Fellow Ai Hoang. AEPD and Mai Thi Loi have used the funds to purchase a buffalo named Opportunity, seen here with Mai Thi Loi and her youngest son Hung. Mai Thi Loi rents the animal out for farm work and after a month she had already doubled her income. As Ai Hoang points out in this blog this will ease Mai Thi Loi’s money worries. But it does not resolve her deeper worry – that her two other sons are chained up to restrain their rage.

September 1, 2016: The Xoan family gets a buffalo!

Left: The first of ten Agent Orange families supported by AEPD and AP receives a buffalo to help Mrs. Pham Thi Doc and her husband Nguyen Van Xoan work their land and produce rice. The animal was bought with funds raised by Peace Fellow Ai Hoang. Outreach workers from the AEPD will advise the family on their investment. Read this report by Peace Fellow Ai Hoang, who raised funds for the family.

   
   
   

 

 

ai and le thanh ducsmallJune 2016: AP raises $3,300 for Agent Orange caregivers.

Peace Fellow Ai Hoang launches an appeal on Global Giving to raise funds for the ten Agent Orange caregivers identified by AP and AEPD in 2015. Ai will spend five months in Vietnam working at the AEPD. She is seen here with Le Thanh Duc, whose three daughters have been paralyzed by dioxin poisoning. Le Thanh Duc has suffered one disaster after another but remains upbeat and optimistic. He is seen as hard working and responsible by AEPD – in short as a good investment.

 

Iain and Xioan 1000

September 2015: Agent Orange caregivers to get relief.

AEPD and AP commit to supporting eleven of the 500 Quang Binh families surveyed in 2014. A team from AP and AEPD visits the families and hears how a grant would ease pressure on caregivers. Each family draws up a budget with help from AEPD. Left: Iain Guest from AP is seen with Nguyen Van Tuan, the youngest son of Pham Thi Do and her husband Nguyen Van Xoan. Tuan, a talented craftsman, makes a model of Hue University that from popsicle sticks which now sits in AP’s office.

 

Seth McIntyre 1000            

September 2015: Agent Orange caregivers to get relief.

AEPD and AP commit to supporting eleven of the 500 Quang Binh families surveyed in 2014. A team from AP and AEPD visits the families and hears how a grant would ease pressure on caregivers. Each family draws up a budget with help from AEPD. Left: Seth McIntyre, center, a graduate student at Brandeis University. helped AEPD organize the first-ever needs assessment of 500 Agent Orange victims in Quang Binh province.

    

 

Profiles

Supported families

Mrs. Vo Thi Toa and Her Sons

Mrs. Vo Thi Toa’s husband joined the army before 1975 which led to him being exposed to Agent Orange. In 2005 he died of stomach cancer. Three of the six children are affected by Agent Orange. In 2016 Ms. Toa’s son Long began to have epilepsy symptoms, forcing her to sell a cow to cover his care. AP paid for a second cow and calf in 2018. Mrs Toa’s oldest son Lam (left) is confined to his bed. Read about the family here. 

 

Nguyen Ngoc Thin, Cao Thi Loan and Their Two Sons

Mr. Nguyen Ngoc Thin joined the Vietnamese army in 1984, nine years after the end of the war. That did not save him from being exposed to Agent Orange and passing it on to his five children. Only two sons remain alive and both have cerebral palsy. The oldest, Nguyen Van Lan, 30, (left) lives tightly wrapped in a hammock because he does not have physical control of his body. Since Mr. Thin did not serve in the war, his two children do not receive compensation. AP bought a cow and a calf for the Thinh family in 2018. Read their full story here.

 

Nguyen Huu Phuc, Nguyen Thi Thanh, and Their Family

Mr. Nguyen Huu Phuc and his wife, Ms. Nguyen Thi Thanh, live in the Tuyen Hoa district of the Quang Binh province with their son, Nguyen Van Tam, and daughter, Nguyen Thi Nam. The couple had eight children, five of whom were affected by Agent Orange. Two died. The remaining three – Tam, Nam, and Nguyen The Bay –   survived. AP bought a cow. for the family  Read their full story here.

 

Duong Thi Hue and Her Daughters

Mrs. Duong Thi Hue and her husband both served in the war and were exposed to Agent Orange. Five of their six children are also affected. Their two daughters, Duong Thi Binh, 28, and Duong Thi Hong Thanh, 26, were born without symptoms but eventually became violent and a threat to the family. Mrs. Hue had to lock them at the back of the house, where they have been chained up for the past 5 years. AP has raised money to purchase a cow for this family (left). Read Mrs. Hue’s story here. 

 

#5 2Phan That and His Family

Phan That, left, was exposed to Agent Orange during the war and has passed dioxin poisoning to his son, Pham Van Linh, 31, and his daughter Pham Thi Linh, 37. Adding to Mr That’s troubles, the family house is built on low-lying land and is regularly flooded by storms which are growing more severe because of climate change. AP has raised $2,000 for this family. Read more.

 

 

maitholoandson1000Mai Thi Loi and Her Sons

Mai Thi Loi has been struggling since her husband died in 1989 and left her with a legacy of Agent Orange. Three sons are deeply affected. Nguyen Van Kien, 31, the oldest, is so disturbed that he flies into a rage and breaks up the house if left alone. His desperate mother had no option but to chain him up. In 2016, his younger brother also had to be constrained. AP has raised $1,500 for this family. Read our news bulletin and read more about this family here.

 

20186066318_e3a0a830a0_bPham Thi Do and Her Family

Pham Thi Do feeds her daughter Luyen, one of five children in this family whose lives have been ruined by Agent Orange. Luyen was born in 1992 with cerebral palsy and has been bed-ridden ever since. Her mother says that on stormy days Luyen presses her nails into her hands so hard that they cut her palms. Mrs Do’s youngest son Tuan died in late 2018 at the age of 23 from hemofilia, linked to dioxin poisoning. AP has raised $1,435 for this family. Read more about this family here.

 

 

Le Thanh duc and his family1000Le Than Duc, Ho Thi Hong, and Their Three Daughters

Mr. Duc was exposed to Agent Orange while serving in the Army and passed the poison to his three daughters, who are virtually paralyzed. The couple suffered more heartbreak in 2014 when their youngest son was killed in a motor accident. Yet, when AP visited in 2015, 2016 and 2017 Mr. Duc was undaunted. Helped by AEPD, he has launched two small businesses and appeared on television as an advocate. AP has raised $1,500 for this family. Read more about the family here.

 

#9 5Le Van Dung, Dang Thi Miet, and Their Missing Children

Le Van Dung and his wife Dang Thi Miet have produced thirteen children and lost twelve to Agent Orange. One child lived for eight months and the couple hoped she would survive, but it was not to be. Their thirteenth child, Li Thi Ngoc Thuy, has severe symptoms. One of Li’s daughters, Le Thi Phuong Thao, has problems with her eyes that are linked to Agent Orange, but the government does not compensate third generation victims. AP has raised $1500 for this family. Read more about this family here.

 

#3 6Tran Thi Thao, Ngo Gia Hue, and Their Three Daughters

Tran Thi Tao feeds her daughter Ngo Thi Thanh Nhan, 24. Nhan is one of three daughters in this family who are afflicted by dwarfism as a result of Agent Orange. She has never spoken and – according to her parents – can do little except eat and sleep. Nhan cannot even use a toilet and her bowel movements are irregular. Her parents do what they can by pumping water into her rectum. They hope to take her to see a specialist to fix the problem, but understand that this would be very expensive. AP has raised $1,500 for this family. Read more about this family here.

#6 2Duong Thi An and Her Children

Three of Mrs. An’s children have been severely affected by Agent Orange. She is pictured here with her second son, Huong, who lost his right eye at the age of nine and is losing the sight of his second eye; and her daughter Hoa, now 35, who was born with Down syndrome. 2017 AP Peace Fellow Jacob Cohn raised $1,500 for the family and visited them twice in the summer of 2017. He writes: “It was great to see our work and everyone’s generosity pay off!” Read Jacob’s report on this family.

 

Team

The AEPD Team

                        

Ms. Nguyen Thi Thang Hong, Chairperson

Ms. Hong is the chairperson of the Association for Empowerment of Persons with Disabilities (AEPD). As the chairperson she provides general guidance for the organization, coordinates with donors, and reports to the Executive Board as well as the provincial congress. Ms. Hong is responsible for overseeing program implementation, conducting advocacy, and developing partnerships. Prior to her position as chairperson, she worked as the Operations Manager to Survivor Corps/Landmine Survivor Network (LSN) in Vietnam–liaising between the organization’s local administration, network staff, and relevant district and provincial authorities on LSN’s operations. In addition to the vast technical expertise acquired during her time with LSN, the skills she cultivated by working in the Foreign Relations Section of the Office of Quang Binh Provincial People’s Committee and the Foreign Affairs Department of the International Cooperation Section have been paramount to her success at AEPD. As a result, Ms. Hong actively works toward AEPD’s mission to improve the quality of life of persons with disabilities everyday by bridging the gap between projects and policies by consulting with all stakeholders sustainably.

                        

Ms. Nguyen Thi Phuong Hao, Program Manager

Ms. Nguyen Thi Phuong Hao is the program manager at the Association for Empowerment of Persons with Disabilities (AEPD). Ms. Hao earned a Master of Arts in Environment, Society and Development at the National University of Ireland in Galway. As the program manager she is responsible developing future programs and proposals and managing, coordinating, and implementing currently funded projects. Prior to working at AEPD, Ms. Hao served as the project coordinator for the German International Cooperation (formerly the German Technical Cooperation) to ensure that a conservation-oriented development framework was being used in the Phong Nha Ke Bang region. Her other professional experience includes working for Counterpart international Vietnam. At the core of her expertise is development and implementation of projects for vulnerable and marginalized persons. She translates this experience to AEPD seamlessly, determinedly developing innovative projects that support intersectional development for persons with disabilities and their networks.

                        

Ms. Le Thi Mai Ngoc, Project Coordinator and Monitoring and Evaluation Officer

Ms. Ngoc is the project coordinator and the monitoring & evaluation officer at the Association for Empowerment of Persons with Disabilities (AEPD). Since graduating in 2015 with a law degree from the University of Economics and Law in Ho Chi Minh City, Ngoc has supported AEPD by facilitating legal procedures, managing, monitoring, and evaluating projects. As a coordinator, she directly implements grants that provide capacity-development and vocational training support to women with disabilities, landmine survivors, Agent Orange caregivers, and children with disabilities in Quang Binh province. She is responsible for volunteer coordination and is the Outreach Workers’ point of contact. By working directly with AEPD’s Outreach Workers and persons with disabilities (PWDs) through field visits, Ngoc has cultivated a strong skillset and understanding of approaches to working with and interventions for PWDs. She is passionate about empowering all persons with disabilities and hopes to take part in creating a society where these vulnerable populations can harness their agency, live more independently, and thrive.

                        

Mr. Truong Minh Hoc, Outreach Worker

Mr. Hoc is an Outreach Worker for the Association for Empowerment of Persons with Disabilities (AEPD). He joined the Vietnamese army in 1977, after the American War ended. Part of his job was to clean up remaining dioxin barrels in the region. As a result, he was exposed to dioxin poison–Agent Orange. He became a Commander of the Company and Battalion by the Army Officer College of Corps 678 in 1983. In 1984, Mr. Hoc was shot in his right leg in Laos. His recovery in in Hanoi lasted six years and eight surgeries. After his recovery, Mr. Hoc began working as an Outreach Worker for AEPD’s predecessor, Landmine Survivor Network, in 2006. He firmly believes that persons with disabilities should support one another to develop resiliency, social inclusion, and better opportunities. Since 2006, Mr. Hoc has successfully completed 13 trainings on monitoring and evaluation, TOT training’s on community-based disaster risk management, working with children with disabilities, startup and business development, community-based rehabilitation, and supporting persons with disabilities with health care from organizations such as AEPD, Plan International, Give2Asia, James Madison University, and the Center for Rural Development in Central Vietnam. He is one of the most direct lines from AEPD to beneficiaries. Mr. Hoc’s commitment to AEPD’s mission and persons with disabilities are invaluable. For more information about Mr. Hoc, click here.

                        

Mr. Hoang Van Luu, Outreach Worker

Mr. Luu is an Outreach Worker for the Association for Empowerment of Persons with Disabilities (AEPD). In 1971, at seven years old and four years after a B-52 bomber in an airstrike in the American War killed his parents, Mr. Luu became a victim of an unexploded ordinance (UXO) accident. He lost his right forearm and three fingers on his left hand. After the accident, Mr. Luu found it quite difficult to acclimate to life. As a result, Mr. Luu strived to create a different life for himself. His hard work paid off when he tested into Hue University, one of the top schools in Vietnam, to study biology. Due to unforeseen circumstances, Mr. Luu left Hue University and learned various trades such as animal husbandry and stove building. To solidify his socio-economic independence he pursued a career in construction. Impressed by him, the Landmine Survivor Network recruited him to become an Outreach Worker in 2003. He has been a dedicated member of the team and has supported countless persons with disabilities and their families for the past 15 years. For more information about Mr. Luu, click here.

                        

Mr. Nguyen Van Thuan, Outreach Worker

Mr. Nguyen Van Thuan is an Outreach Worker for the Association for Empowerment of Persons with Disabilities (AEPD). In May 1978, Mr. Thuan became an engineer for the Vietnamese army. Three months later he embarked on a mining mission in Cambodia where a landmine accidentally exploded in his hands, blowing up his entire left hand and three fingers on his right hand. He returned from the mission defeated and unemployed. Upon returning he adapted his quotidian to his disabilities, taught himself how to drive a motorbike, and opened up a small sugar cane juice business. The recovery was physically and emotionally challenging. Mr. Thuan started as a security guard for the Landmine Survivor Network in 2003. He soon realized he
wanted to take on a more active role within the organization to help persons with disabilities develop a support system and was recruited as an Outreach Worker for AEPD. Mr. Thuan engages with AEPD’s beneficiaries by highlighting their human dignity. He is compassionate but firm–reminding them of their worth and abilities. He leads by example, supports through his expertise in several technical capacities, and identifies with the beneficiaries so that they can adapt and overcome. His support is instrumental to AEPD’s work with persons with disabilities in Quang Binh. For more information about Mr. Thuan, click here.

                        

Ms. Nguyen Thi Thao, Accountant

Ms. Nguyen Thi Thao is the accountant for the Association for Empowerment of Persons with Disabilities (AEPD).  Since joining the AEPD team she focuses on managing and controlling the organization’s bank accounts. She also helps to develop budget proposals, study and analyze financial requirements of donors, helps with monitoring revenues and expenditures to ensure that all expenses in the organization are in accordance with principals and financial regulations. She also maintains and prepares all tax and financial reports and contracts. Ms. Thao is an essential part of helping the AEPD team organize their budget and finance procedures.

Supporters

Supporters

With many thanks to…

2016 Supporters:

Susan Bernstein, Christina Breneman, Margaret Brennan, Hannah Chi, Alan Collins, Paulo Dias, Hunter Gatewood, Steven Grover, Naresh Grover, Oliver Grover, Syed Ibrahim Habeeb Mohamed, Rachael Hughen, Linda Huynh, Bibhu Joshi, Mrinal Kachhara, Ting-Ting Kao, Sheri Langen, Cordellia Le, Rita Lo, Willie Loza, Andrew A MacGregor, Alan Miranda, Andy Ng, Vivian Nguyen, Kelly Nguyen, Mai Nguyen, Ductoan Nguyen, Lynn Pham, Julie Prince, Amanda Reis, Tim Riley, Glenn Ruga, Edegard Santos, Kay Scanlan, Keith Schomig, Darlene Smallman, Nguyen Tran, Cindy Troung, Long Van, White & Case, Reyhane Youssefi, Xianghui Zhou

2017 Supporters:

Langston Alexander, Brooke Ashland, Natalie Balents, Carter Banker, Patricia Bliss-Guest, Kimberly Chang, Alessandro Ciccolo, Roger Cohn, Gabriel Cohn, Cheri Cohn, Roger Cohn, Seth Cohn, Arthur Desloges, Jordan Dreilinger, Cheryl Drew, Kirsten Drew, Ellen Farnham, Emily Gannam, Bethany Gardner, Richard Hall, Nguyen Hoang Hieu, Jill and Joel Hurwitz, Jim Hutchins, Barbara Katz Hinden, Mei L Klein, Cyrus Krohn, Alice Markowitz, Jefferson Seth McIntyre, Bradley J. Miskell, Neal and Anne Morris, Barbara Moser, Mai T Nguyen, Thu Nguyen, Mary Passeri, Chris Peluso, Carol Pogash, Victoria Shoemaker, Molly Smyrl, Alison Stalker, Ivana Wong

2018 Supporters:

Scott Allen, Saleh Alromaihi, Pham Tuan Anh, Alyssa Bertoni, Vinh Chau, Scarlett Chidgey, Marcela de Campos, Ngoc Dinh, Cindy Frick, Stephenie Green, Thomas Hilde, Nathalie Huguet, Mei L. Klein, Nai Le, Nguyen Tran, Seanin Van Rooy, Ashley Westrup

2019 Supporters:

Duong Nguyen Ha Giang

Ai at fundraiser

Before Ai Hoang left to serve as a Peace Fellow in Vietnam in June 2016, her family organized an event for her at her father’s church in California. The event raised a small amount of money and encouraged Ai to launch no fewer than three online appeals, which raised $4,500 for three Agent Orange families. Her father later visited Vietnam and donated to a fourth family and to the AEPD. Our heartfelt thanks to this remarkable family.

 

Resources

Resources from AP

News Bulletins 

Remembering Nguyen Van Tuan, 23, Victim of Agent Orange September 14, 2018

Horror and Heroism as Vietnamese Confront the Legacy of Agent Orange September 13, 2017

Cows and Courage Keep Agent Orange at Bay in Vietnam November 14, 2016

Peace Fellows to Tackle the Legacy of War and Disaster  June 9, 2015

Agent Orange Lives on in Vietnam, Poisoning Children and Ruining Lives September 2, 2014

Peace Fellows to Take on Agent Orange, War Rape and Plastic Pollution  June 6, 2014

Empowering Persons with Disabilities in Bangladesh, Uganda and Vietnam August 16, 2011

 

Peace Fellow Blogs

Marcela fellow

Click here to see Marcela’s photos

Marcela De Campos’ Blog (2018)

Marcela documented her visits to all eleven families that received grants from AEPD and AP, giving thorough updates to how the families have been doing since the grant and where they plan on going from here. 

“But a bigger question remains for Mr. Duc: ‘What will happen to my children in the event of my passing?’ Like other Campaign beneficiaries, Mr. Duc is thinking toward the future and wondering how best to set up a contingency plan in case of an emergency. And that is truly the big and very real question that haunts these caregivers.”

Jacob fellow

Click here to see Jacob’s photos

Jacob Cohn’s Blog (2017)

Jacob wrote 17 thoughtful blogs during his ten weeks at the AEPD. His blogs describe his visits to the six families that have received funding through AP and describe his own feelings as a young American at viewing the lasting legacy of the Vietnam War. Jacob raised $1,500 for the family of Ms. Anh, seen in the photo and trained a volunteer, Dat, to manage the AEPD website. His blogs are a must-read for anyone interested in conflict.

“We haven’t really reckoned with Agent Orange as a society, but it’s not too late.”

 

 

 

 

 

 

 

 

Click here to see Ai’s photos.

Ai Hoang’s Blog (2016)

Ai Hoang launches AP’s fundraising for four families

“As I finish my second week here of AEPD, I’m reminded once again that there are never any real winners in war. The losses are great on all sides and the consequences continue to affect generation and generation of innocents to come. So here I am, doing what I believe is best to assist with the healing process.”

See Armando’s photos by clicking here.

Armando Gallardo’s Blog (2015)

Armando visits the eleven families with Iain Guest from AP and produces strong photos and profiles that will be used by AP for web pages and appeals.

“When Mr. Dung first told us his story, it sounded as something that was coming from one of the many documentaries done about Agent Orange; His wife, who also helped during the war by building roads, had 13 children and out of all of them only 1 made it alive. The rest of them didn’t make it more than 8 months.”

Look at Jefferson’s photos by clicking here.

Seth McIntyre’s Blog (2014)

Fellow Seth McIntyre is hired by AP and AEPD to develop a questionnaire and organize a survey of 500 affected families. The costs of the survey are covered by Scott Allen, an AP Board member. Seth also produces several powerful profiles on veterans and their families which help to explain the compensation policy of the Vietnamese government. Seth’s superb photos of the veterans receive over 12,000 views.

“Luan asks me if I want to take pictures of the purple, cauterized scar running the length of his chest and another from his ankle to his upper thigh, his constant reminder of the wages of life. But this didn’t matter, at least, not now it doesn’t.”

Click here to see Kelly’s photos.

Kelly Howell’s Blog (2013)

Kelly Howell is the first Fellow to study the devastating impact of dioxin poisoning, particularly on the second generation. Kelly also introduces AP to the family of Le Thanh Duc.

“I met with several families who were affected by Agent Orange. Only in the last decade have people in the rural areas of Vietnam begun to hear about AO. Until then, they had no idea what was happening in some of the families there. Their stories were heart-rending yet hopeful, and I’d like you to meet some of the families that I met.”

Click here to see Jesse’s photos.

Jesse Cottrell’s Blog (2012)

Fellow Jesse Cottrell produces an excellent video on the three Phan siblings, who have built a thriving hairdressing business. Jesse’s video is tweeted by, among others, the actor Alec Baldwin.

“On the plane, I was seated next to an elderly Vietnamese woman, who threw me curious glances. Her eyes peered merrily at me over the top of the mask, and upon landing, she gave me a hearty high five. I thought to myself that she likely had memories of the wars here. Here I am, I thought, an American in post-war Vietnam, what will people think of me? Her high-five said to me, hey, welcome!, and I’ve encountered that same sentiment again and again, here in the quaint city of Dong Hoi.”

Simon 2010

Simon 2010

Simon Kläntschi’s Blog (2011)

Simon Klantschi, from Switzerland, is the first Fellow to meet with Agent Orange survivors. read his blog about the inspiring Mrs. Hue, who sells beer and wants to be an opera singer.

“Nguyen Thi My Hue was born disabled. She has a serious congenital malformation, is humpbacked and has experienced an abnormal growth of her body. Today, at the age of thirty, she is only tall like a ten-year-old child. Hue is a victim of Agent Orange. Hue begins her story with: ‘I was born unlucky,’ but her eyes are bright and she smiles.”

 

Advocacy Quilts

Vietnam Disability quilt 4x4

Peace Fellow Jesse Cottrell (2011) helps two members of AEPD who were injured during the Vietnam War to describe the impact of climate change on persons with disability. Their delicate squares are made from chiffon and silk and are assembled in the US by quilter Teresa Orr to be shown against the light. The Vietnam Disability Quilt has been widely shown at exhibitions in the US.

 

 

 

 

AEPD Youtube Videos